Welcome to How I got Here

 


Hi. I'm Amy. Wife for 18 years and counting, mom to two boys. We enjoy our "country living" as we live in a rural town now after moving from a big city.

I lived a relatively normal life until I hit 36, and things kind of went downhill. I was in a car wreck, which messed up my back. Things happened with my doctor at the time, so I finally did what my sister was begging me to do. I switched to her doctor, who is a man. There's a whole other story there, but we won't go there right now. Anyway, with my husband by my side, we went to this new doctor. He is amazing. I mentioned to him that when I stand up, I often get light headed, and my normal heart rate was around 115bpm. He referred me to a cardiologist. I did the testing and found out that it was POTS.

    

    He put me on a medicine that helped, and gave me guidance. So, dysautonomia was checked of my box. I was so glad to have answers and a treatment plan. I can't tell you the timing, because I really don't really remember, but first I started having tremors. I want to my doctor (the old one, why I did that, I have no idea). She sat there for 45 minutes trying to figure it out, and finally referred me to the movement clinic at the hospital that was about an hour away.


    So we go to this clinic, where he does these tests on me, and tells me that he was a 72 hour EEG on my brain to check for epilepsy. This was to be done at home. So, I decided to go to my sister's house for it. We did the EEG, and I had what my husband calls "focal seizures". We did this, and was told we would have the answers by Tuesday. We did not get any answers.


    In February of last year, my husband, my youngest, and our friends when my heart rate shot up to 175. That's when all the fun started.



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