What’s Happened Since.

 

I've been trying to decide what to share since revealing my diagnoses. There isn't much to share, because I still haven't been back to my neurologist (he rescheduled it without telling me).

    My husband surprised me by getting my hair and nails done. I felt so loved and beautiful.



                                   


I have been doing Tiktok Shop videos when I am feeling well. I love it. My next step will hopefully be virtual assisting, but not as intense.


 My husband took our youngest son on a trip to go pickup/buy a new truck. I stayed with my sister so that my oldest wouldn't be alone with me if I had a mega seizure there. We did some thrifting, bought coffee, I had a seizure in the dressing room at Goodwill. I did my best to enjoy myself since I did not get to go to Texas with them. They were going to my in laws, and I was not welcome there.


 

We went to one of those Nutritional Tea stores, and my niece bought me a hen (I am obsessed with chickens). We got a little Jesus at the thrift store.

Our last outing was trying 7Brew Coffee, because we don't have one where I live. I was happy with it, and the pineapple mango Energy Drink.

    We are planning on going to my cousin's wedding, so we rented a cabin in TN. My husband is also having surgery on his back. That is pretty scary, but I am sure he'll be fine. 

So far, my latest symptoms are "absence seizures", falling, not being able to write, and difficulty writing. I have been under the care of a therapist who is helping me. So, with that being said, my newest diagnosis is officially PTSD, along with the MDD, ADHD and the cognitive issues. And on that note, I am going on to bed. Have a blessed night

Comments

Post a Comment

Popular posts from this blog

The Diagnsis (ses)

      I feel it is important to point out, before moving on to the "One Year Later" part, that one of the neurologists, he was actually the one who diagnosed me....told me that I would "not fall through the cracks...again", he was the one who referred to the University of Louisville Psychogenic Non-Epileptic Seizure Clinic, with the promise that I would make a full recovery. I held onto that. I am young, I have a husband who is disabled with a back that we are preparing for surgery on, and two kids. I wanted to believe I would recover fully.       The neurologist that promise me that, left the hospital. The neurologist, at the PNES clinic found it not to be important enough for me to be notified that my appointment was reset out 8 weeks. I reached out to his APRN, and was told there was nothing she could do with the symptoms that are slowly showing their faces. So now, at 42, I can't write. No, my brain stops telling my hand what to write after the fir...
Read more

Welcome to How I got Here

  Hi. I'm Amy. Wife for 18 years and counting, mom to two boys. We enjoy our "country living" as we live in a rural town now after moving from a big city. I lived a relatively normal life until I hit 36, and things kind of went downhill. I was in a car wreck, which messed up my back. Things happened with my doctor at the time, so I finally did what my sister was begging me to do. I switched to her doctor, who is a man. There's a whole other story there, but we won't go there right now. Anyway, with my husband by my side, we went to this new doctor. He is amazing. I mentioned to him that when I stand up, I often get light headed, and my normal heart rate was around 115bpm. He referred me to a cardiologist. I did the testing and found out that it was POTS.          He put me on a medicine that helped, and gave me guidance. So, dysautonomia was checked of my box. I was so glad to have answers and a treatment plan. I can't tell you the timing, because I really ...
Read more

Part Two

           So I left you off right as it got interesting. So here is the next part.  My husband, B and my friend made the decision to take me to the nearest hospital. My heart rate was just too high, and I started to be unable to speak. The hospital was literally just down the street, so we hopped in the van. I started to shake and convulse in the van. A little back story, I was already under the care of a movement neurologist, but we heard nothing from him. I had a three day EEG with no results. So, we literally were thinking I had epilepsy like my dad. The rest of the story is as told to me by my husband, because there are a lot of holes in my memory.  We got to the hospital, and my friend took my son home. I was taken straight back. because my heart rate was so high. They took blood and did a "dinky" EEG in the ER (B's words, not mine). I continued to convulse, and they gave me some medicine. I believe it was keppra and ativan. They gave me tim...
Read more